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Inflammatory Breast Cancer Memorial Site
Pathfinders

'The names listed on this Memorial Site
are those of the extraordinary people
we honor through our own survival.

These beloved men and women
have become the Pathfinders who,
although gone on to another place,
remain with us in spirit.

Each time you see a twinkling light
or a bright shining star,
please celebrate their spirit and memory
for the comfort, strength and love
they brought to each of us.'

--by Jackie Arnold, IBC patient

A gift of love

This site is a true work of love and remembrance. Love for those who have so valiantly fought Inflammatory Breast Cancer, and Love for those who have stood beside us every difficult step of the way; but most of all, it is a place of remembrance of the wonderful, strong and courageous men and women who did not win the battle here on earth, but have gone forward to become our Pathfinders.

They fight for us with spiritual strength from another sphere. Their spirits live within each of us who have been blessed to be touched, even for a few months, or days or hours, by the thoughts and words and memories they have given us.

This is not a site to mourn the departed, although it may give comfort to some of us to do so, but a place to celebrate their living. Each one of our brave Pathfinders will live forever, so long as they live within our hearts. We, the warriors, who remain behind and continue the fight against IBC, give thanks for the lessons they have taught us and pray that one day, our lives will give as much meaning to some other survivors!

Jacqueline

********************

Mon, 11 Oct 1999

Laura wrote:

I'm in tears as I sit here and read through the list of those who have not survived. It hurts to see such a long list. They were fighters, and I'll go on trying to be as strong and fight as hard as they did.

********************

Laura,

I understand how you feel. This was a very painful experience for me, but I considered it a labor of love. In many cases, I had to read through many posts on or about the person before I could find what I needed. This brought to life the stories of people I knew and people I did not know.

As I worked, all I could think was it was like talking to these people from beyond. They continued to tell their stories and to offer their insight. There were many times I cried, and some that I laughed. I feel so close to them. In many ways, it helped strengthen my resolve to get a grip on my life and LIVE. These people did - right up until the end. So, what more can we request?

It also helped reduce my fear of dying. As I witnessed the strength they, and their families displayed, well, I don't know how to express what I felt. Maybe I felt as if they were standing over my shoulder, saying, get on with it, girlfriend, acknowledge our LIVES, not our deaths.

So, I don't want them to be forgotten, not a one. They do not represent a statistic for failure to me, but serve as a light that I feel now surrounds me. They are with me. They care about me, and I care about them.

OK, so this may sound somewhat metaphysical. I don't know. I only know what started out as a personal curiosity turned into an experience that gave me a new sense of purpose - at a time when I needed one.

So Laura, I DO understand how you feel. We fight the best we can. We accept more than we want to accept at times, and still we go on, and on, and on. Even when we are not here in body, I know that our words, our thoughts and our love will remain here for others to feel and take comfort. So, it really has been worth something after all, this experience, hasn't it?

Not everyone gets the opportunity to face their own mortality and still have time to say what we think, to tell others how much we love them, or to change our lives (before it's too late). Not everyone has the chance to greet Death, look him in the eye and tell him, "Back off, Buster, I ain't ready yet!!!" I ain't ready yet, Laura, and neither are you!!! God bless you for being there for me during the past 2 1/2 years!

********************


To our newbies and oldies.... Even after 2 1/2 years, I forget that our archives hold the stories of hundreds of people. By going to the search page and entering the name or email ID of someone for whom you are interested, you can access all their posts. It pretty much tracks our ups and downs. Also, you can check archives by chronological order (date, all the way back to when Pete and Menya first started tracking them or a general topic). If the name, date or topic appears in a post, it can be accessed.

As I worked on the Memorium list, which will continue to be a work in progress, it became like solving a puzzle. Little bits and pieces fell into place, and suddenly I could see the person as a whole. If you have time, browse through and see what else is available, besides our online support. Pete and Menya, again and again, I thank you, for EVERY single day you have given to this site and for touching the lives of each of us, plus the countless others with whom we have shared our feelings.

God Bless you.

Jackie


The term IBC
Pathfinder was originally
proposed in 1999 by Lee Smith and Leighsah
Jones, two inspirational IBC patients. Lee wrote:

Pathfinder is meant to be a title of honour
for those who made the fearful journey with
courage and shared their path with us. I want
to emphasize that each person searches out
their own path. There is no single path in
this journey. Not all of us will be followers.

Leighsah wrote in September, 1999 that she is a
lifetime member of Pathfinder Division, 8th Infantry,
Second Army whose code of conduct states:

I will never knowingly surrender
while I still have the means to resist.


Please click on the title of the song in order to hear the music.

Wind Beneath My Wings

It must have been cold there in my shadow,
to never have sunlight on your face.
You were content to let me shine, that's your way.
You always walked a step behind.

So I was the one with all the glory,
while you were the one with all the strain.
A beautiful face without a name for so long.
A beautiful smile to hide the pain.

Did you ever know that you're my hero,
and everything I would like to be?
I can fly higher than an eagle,
for you are the wind beneath my wings.

It might have appeared to go unnoticed,
but I've got it all here in my heart.
I want you to know I know the truth, of course I know it.
I would be nothing without you.

Did you ever know that you're my hero?
You're everything I wish I could be.
I could fly higher than an eagle,
for you are the wind beneath my wings.

Did I ever tell you you're my hero?
You're everything, everything I wish I could be.
Oh, and I, I could fly higher than an eagle,
for you are the wind beneath my wings,
'cause you are the wind beneath my wings.

Oh, the wind beneath my wings.
You, you, you, you are the wind beneath my wings.
Fly, fly, fly away. You let me fly so high.
Oh, you, you, you, the wind beneath my wings.
Oh, you, you, you, the wind beneath my wings.

Fly, fly, fly high against the sky,
so high I almost touch the sky.
Thank you, thank you,
thank God for you, the wind beneath my wings.

-

twinkling star image

-

Please click here to Submit Information
to this IBC Memorial Site.

Please click here to choose a Song
while viewing this website or
for your Pathfinder's webpage.

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